Sunday, May 2, 2010

Round 4...

Wow...I really can't believe it has been so long since we've written to all our friends and family - things have been so busy and a great deal has happened in the past 3 weeks. This past Tuesday (April 27th), Brad had his 4th round of chemo. Other than his exhaustion and nausea, we never know what to expect as far as his side effects go. Sometimes some food/drink items taste badly, other times they are fine. Sometimes he gets mouth sores and hiccups, sometimes he doesn't. It's very strange.

This round has seemed to be relatively calm and it's great to see Brad doing so well in the grand scheme of things. My emotions have mostly been in check the past few weeks, but the bigger issue this round is that I started feeling crummy on Wednesday. By Thursday, I felt like I had been run over by a semi and literally spent the majority of the day in bed. On Friday I went to the doctor out of fear that I would make Brad sick while his immune system is so compromised and then promptly returned to bed for the rest of the day. I was tested for mono and strep and thankfully both tests came back negative. I was told that I have what the Dr. is officially referring to as the "crud" (which doesn't sound so official to me). She said it has the symptoms of both mono and strep, without having either and that I should expect to feel kinda crummy off and on for the next 4-6 weeks. I'm hoping this is some kind of misdiagnosis. While I have more energy than I have the past few days today, I'm definitely not 100% and the best part now is that Avery has it. Ugh...we're taking extra precautions around Brad and getting as much rest as we can while it's the weekend.

So I mentioned that the past few weeks have been busy. Although much of it has been work related, on April 9th, I received a phone call from one of my dearest friends from the past. Sheri and I go back to when I was about 12 years old and she was my Youth for Christ Big Sister where I grew up in Michigan. Sheri now lives in Tennessee and we reconnected through Facebook (CRAZY!). She had been following our blog and asked if she and Betsy, her oldest daughter could come for a visit. I hadn't seen Betsy or Sheri in about 15 years! We had the most amazing weekend together, definitely what I have been referring to as "soul food." This was Sheri's first time meeting Brad and Avery and her first time participating in Relay for Life. I have to admit, I was nervous to see them, but as soon as the nerves wore off, it was like no time had passed at all. Avery has decided that he has a little crush on Betsy, despite the fact that she has a serious boyfriend. Strangely enough, the picture with the three of us together, didn't turn out so well - but here's Sheri and Betsy:



Relay for Life was such an emotional event for me this year. Brad's Mom and Dad came and this was their first Relay also. Avery, Brad's Mom and Dad, Brad and I all participated in the survivor lap to kick off the event. I think I cried the entire time. Avery was so proud of all of his laps and even wrote on a board about why he relays - here's a pic of what he wrote:


You probably can't read it so well, but Avery wrote "My Dad has lufuma" (and signed his name). He then went back to the sign and wrote underneath it: "Gone green for Brad" and signed the board again. I loved his spelling of lymphoma. Avery was quite emotional this year also - it's amazing how much he "gets" it as an 11, almost 12 year old. Trying to put a smile on my face during the event, he went and purchased a beautiful necklace from one of the fundraising tables at Relay for me. It was so thoughtful. He was adorable - he came back to the YMCA tent and said that he bought something for me while sharing that he spent one third of the money that he brought to spend throughout the night. Yep, it was the kindest, most heartfelt $5.00 anybody has ever spent on me. I have worn it several times and Avery notices it each time I do.

We have much to be thankful for and only two more sessions to go. We pray for a long remission so that we can put the thought of Brad's bone marrow transplant on the back burner for a while. We are continuously finding ways to feel more connected at our church which feels really amazing.

We have several friends who have been recently diagnosed with cancer and/or are facing medical and personal challenges.
Jilli - know that you are always in our thoughts, in our hearts and minds and in our prayers. I know returning to your chemotherapy regimen this week will be exhausting, but I have faith in you!
Mike - we are praying for you and your family with the hopes that the insurance challenges are somehow answered and that the tumors were discovered in time to prevent amputation.
Jeanne - girl, you need to stay out of the hospital and get yourself well so that we can see each other soon! I love you.
Sheri - I know that we have been reconnected for a reason and a purpose. I have faith that the challenges that have been laid at your feet will be met with grace and dignity.

We are keeping each of you close in our thoughts on a daily basis and will ask for extra strength during such challenging times.

Much love to all of you,
Sandy

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