I have been HORRIBLE at keeping everybody up to date on Brad's progress and am so sorry for that. To say that things have been busy is an understatement, but several folks have asked how he's doing so I wanted to share the latest.
Brad completed his 4 rituxan infusions in March and did really well with the treatment. Compared to his chemo, there were virtually no side effects except for extreme exhaustion the day of and the day after treatment. We did see a slight increase in his energy level, but aren't sure if that was because Brad mentally knew he was on the right course again or was really regaining some strength.
When Brad returned to Dr. Fintel the decision was made to continue treating Brad with the infusions for the next 2 years. We were and continue to be really up and down and all over the board with our emotions about this. While the infusions will only take place every other month, instead of weekly, there's the down side that while he is in active treatment we cannot say he's in remission. I know there are so many patients and caregivers out there that would give and do anything to be in the position we are in right now where we do have treatment options. However I have to say, this process and this relapse has been much more challenging than I ever thought it would be.
The decision was made this past Friday to reinstall Brad's port into his chest since we know he will continue treatment for at least the next two years. We should find out this week when that surgery will take place. I'm not sure if it will happen prior to his next treatment on May 3rd. What I do know, is that it's going to knock Brad out of commission for about a week if the process goes anything like it did the first time around.
This has been a really tough week on so many levels. Without going into the details, please pray for strength, an ongoing commitment to healing and having the desire to fight the good fight.
Thankful for so much,
Sandy
